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From
everyone at the National Alliance for Caregiving, we hope you
have a fun time with friends and family celebrating the Fourth of
July holiday this weekend! Independence Day is a time to
celebrate, but it's important to realize that for some Veterans,
typical Independence Day celebrations include reminders that may
trigger uneasiness. You can check out a few pointers with the
link below from the U.S. Department of Affairs to help make this
Fourth of July enjoyable for all — especially those who have
served our country.
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How
Alzheimer's and Brain Injuries Affect Veterans' Families
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"A
new AARP/National Alliance for Caregiving study suggests that
military veterans make up a disproportionate share of the
millions of Americans receiving care from family and friends, a
reminder of the critical but unpaid work we honor in June, which
is Alzheimer’s
& Brain Awareness Month.
Twenty-six-year-old
Kamaile Kapanui dreams of one day studying oceanography and
setting sail on a research boat from her home in Waimea, on
Hawaii’s Big Island. But for now, she’s putting those dreams on
pause.
These
days, Kamaile is rarely far away from home. She looks after her
grandfather, Bobby Nuai, an 80-year-old Korean War veteran with
Alzheimer’s. 'School will always be there,' says Kamaile.
'Grandpa won’t.' As Bobby’s primary caregiver, working as a
deckhand on a snorkeling tour boat and hanging out with her
grandfather keeps her busy enough."
From:
TODAY | June 26, 2020
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1/5 of Americans From Gen Z On Up Are Family
Caregivers
"Caregiving
the U.S. 2020 shows that the profile of the family caregiver is
changing. While caregiving spans all generations, the study
found more young people providing care, including 6% who are Gen
Z and 23% who are Millennials.
I
Hispanics
are the youngest group caring for an adult, with a mean age of
43.3 years old, and account for about 17% of all family
caregivers. (The Spanish language version of the study is
available here.)"
I
From:
The Lund Report | June 18, 2020
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4 Forecasts for Caregivers in a Post-Pandemic
World
"'It
is — and should be — impossible to have a meaningful
conversation about recovering from this pandemic without
addressing an aspect of Americans’ lives that is too often
invisible: caregiving,' wrote Melinda Gates, co-chair of
the Bill & Melinda Gates Foundation, in a recent Washington
Post op-ed piece. 'We overlook that it will require scaling up
caregiving solutions…It’s [also] hard to get back to work when
you’re responsible for children or older adults but have nowhere
to turn for safe, affordable care.'"
From:
Next Avenue | June 26, 2020
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Participate
in New NAC Projects
The
National Alliance for Caregiving (NAC) would like to invite past
and current caregivers of children with a serious illness to
participate in a study entitled “Needs Assessment to Develop a
Guidebook for Families and Caregivers of Children with Serious Illnesses”.
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We are
also looking for caregivers of children and adolescents with
Crohn's Disease for a series of listening sessions to inform the
content of an upcoming guidebook for caregivers. The listening
sessions will promote a discussion around the challenges of caring
for a child with Crohn's Disease and suggestions caregivers might
have for resources and tools to include that they may have
benefitted from on their care journeys with Crohn's Disease.
Please
note that we are looking for a maximum of 18 caregivers, and the
final 18 will be selected to allow for a diverse sample of
caregivers in the listening sessions.
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Guide on
Handling Coughs and Colds for the Elderly
With the
current Coronavirus pandemic affecting us all, this is an
important time to know how to care for coughs and colds for the
elderly. A new guide from Covonia provide valuable information,
such as:
· Important
information about colds and flu, why elderly people are at a
higher risk of infection, and how influenza and the common cold
can lead to more serious health complications in older
adult;
· Key
information on how to spot the signs and symptoms of flu, the
different types of infections, and the importance of identifying
and treating symptoms early;
· Useful
tips and advice on preventive measures to help keep the elderly
from catching colds and flu;
· Helpful
online resources and tools for caregivers and families to help
elderly loved ones stay safe and healthy against coughs and
colds.
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For more
resources for older adults, the John A. Hartford has an updated
list of COVID-19 resources for nursing homes and long-term care HERE.
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NEW CAREGIVING SURVEYS!
Participate in a Survey from Colorado State
University
A team
of researchers from Colorado State University would like to
understand how family relationships are connected to feelings of
preparedness for the caregiving role and responsibilities. The
survey is anonymous, and you could receive a $50 Amazon gift card
for participating! Learn more HERE.
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Participate in a Survey for Caregivers Aged 40-70
Are you
a caregiver? If so, you may qualify for this research study and
be entered into a raffle to receive a $50 Amazon gift card.
Volunteers between the ages of 40-70 are being recruited to
complete an online survey about their experiences as caregivers to
parents, grandparents, guardians or siblings. Responses are
anonymous, and the study will take 30-45 minutes.
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ARE YOU A CAREGIVER OF AN INDIVIDUAL WITH OA?
Consider Sharing Your Perspective for the Pfizer
and Lilly Caregiver/Patient Video Series
Pfizer and
Lilly are seeking perspectives from individuals living with
osteoarthritis (OA) pain, and their loved ones or caregivers, for
a video series to help educate and raise awareness of the burden
that OA can have on people’s lives. The purpose of the videos is
to share perspectives on the physical impact of OA, as well as
the impact that OA has on other aspects of someone’s life (e.g.
relationships, work, hobbies/interests). They would also like to
capture perspectives on the ways that people living with OA work
with loved ones or caregivers to help them manage their
condition. These videos will be shared internally with
Pfizer/Lilly colleagues, as well as publicly on social media and
digital channels. They are also looking for patients who may be
willing to share their stories with journalists, upon
request.
In
particular, they are seeking individuals who have been diagnosed
with moderate or severe OA (or have been living with OA for
several years), are 55+ and would be comfortable sharing
their stories publicly. In addition, despite their struggle with
OA, these individuals would ideally have a positive outlook and
are actively managing their OA, and would like to help others
living with the condition.
If you
know of anyone who may be interested in participating or learning
more, please have them contact GCI Health, an agency working on
behalf of Pfizer and Lilly, directly at MyOAStory@gcihealth.com or 347-563-8750.
Please do not provide any patient names directly to GCI Health or
anyone at Pfizer or Lilly. Patients who agree to participate will
be required to sign consent and release forms and may be required
to enter into agreements with Pfizer/Lilly and provide
documentation of moderate or severe OA diagnosis.
Please
note, Pfizer and Lilly continue to evaluate the situation with
COVID-19 and do not plan to engage in any in-person activities at
this time; these activities will be done virtually.
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FOLLOW US
TO STAY CURRENT ON CAREGIVING!
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