Sunday, March 1, 2020

The Rosalynn Carter Institute for Caregiving

Message from Rosalynn Carter
"More than 40 million Americans provide care for adults and children who cannot care for themselves. Whether helping an aging parent, a seriously ill spouse or child or some other special person in need, those giving care often do so at a great personal sacrifice of time, energy and income. The emotional stress can be tremendous,too. Yet it is not just the family caregiver who is often overwhelmed. Many professional caregivers today face enormous challenges trying to cope with an unwieldy patient load in an increasingly strained health care system.

I know firsthand the demands of caregiving. When I was 12 years old my father became terminally ill with leukemia. I was one of four children and as the oldest and a daughter, my 34-year old mother depended on me. Since returning home from the White House, we have supported many members of Jimmy’s family who have died of cancer, and I helped care for my mother until she died in 2000 at the age of 94. As I’ve traveled this country speaking about caregiving, person after person has stepped forward to tell me their own stories. So many people giving care to their loved ones feel isolated, inadequate, despairing. One man said he would wait until his terminally ill wife was out of the room to break down and cry. A woman caring for her elderly, infirm mother told me she actually ran away for an afternoon, checked into a hotel, but soon returned, feeling desolate that she had even contemplated abandoning her father.

At a time when more and more Americans are called on to give care, it is critically important that we do all we can to support both family and professional caregivers."
Education & Training
RCI is the only national institute to integrate both professional and family caregiver issues in research, education and advocacy agendas. Former First Lady Rosalynn Carter’s chief concern is that if caregivers – family or professional – are suffering, the quality of care they provide to others and to themselves is compromised. Through the RCI’s academic, scholarship, and education and training programs, we seek to enhance the quality of care provision as well as enhance the quality of life for all caregivers and those they provide care to.

RCI also offer a range of caregiver resources, online supports and various publications that assist bridging the gap between need and knowledge.