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Senate
Passes Respite Care Program Revival Bill
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"Members
of the Senate have voted unanimously to pass S. 995, the Senate’s
version of the 'Lifespan Respite Care Reauthorization
Act of 2019' bill.
S. 995
would provide $50 million in state respite care grant funding
from 2020 through 2024.
[Senator
Susan] Collins [R-ME] said in a comment included in a bill
passage announcement that respite call is essential for all
caregivers.
'It
helps to reduce the mental stress and physical health issues they
may experience,' Collins said. 'With Senate passage of our bill,
we are one step closer to giving family caregivers and their
loved ones the support they need by ensuring that quality respite
care is available and accessible.'
From:
ThinkAdvisor | February 26, 2020
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How to Explain a Caregiver Gap on Your Resume
"'There's
nothing wrong with putting caregiving on your résumé like a
job. Instead of a position with a company, write the dates you
were out and something like, provided full time care for
parent, who has died. That explains that the situation is
resolved.'
But
don't be apologetic, whether on your résumé or in a
face-to-face interview.
I
'Caregiving
is a huge responsibility that requires skills of advocacy,
persuasiveness, resilience. Keep your explanation simple, one
or two sentences, but don't hide or belittle what you've done,'
advised Meehl. 'Talk about how taking a detour was enriching.'
From:
Star Tribune | February 25, 2020
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How to Balance Parenting and Elder Caregiving
"Family
circumstances, the child’s age and the adult’s condition all
factor into what sort of role your child can play. But remember
that modeling healthy caregiving today could have an impact
down the road when you grow older and become more reliant on your
kids.
Patience
has become a commodity as the strain of caregiving and
parenting pulls me in different directions. I find myself
getting short; sometimes with her, other times with the kids.
The immediate reaction of guilt looms over me when this happens.
I reached out to my colleague Ruth Drew at the Alzheimer’s
Association for some guidance."
I
From:
Life Hacker | February 26, 2020
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Saturday
is Rare Disease Day!
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Rare
Disease Day is the official international awareness-raising
campaign for rare diseases, originally launched by EURORDIS-Rare
Diseases Europe and its Council of National Alliances in 2008.
Rare Disease Day takes place on the last day of February each
year, and the goal of the campaign is to raise awareness amongst
the general public and decision-makers about rare diseases and
their impact on patients' lives.
There
are over 300 million people worldwide living with a rare disease.
Rare disease patients across borders, and across the more than
6,000 rare disease conditions, need more equitable access to
diagnosis, treatment, care, and social opportunity.
In 2018,
NAC and Global Genes released a report outlining the state of
caregiving for rare disease caregivers. See the findings HERE.
Join us
in raising awareness about rare diseases and their impact on
patients' and caregivers' lives. Click the link below to
participate in Rare Disease Day 2020!
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New
Caregiving Research from the CDC
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A new
report from the CDC on caregiver health was published in the Morbidity
and Mortality Weekly Report (MMWR) last week using data from 44
states, Washington D.C. and Puerto Rico. The report adds to
the existing knowledge of informal caregivers' compromised health
with new data showing that 20% of caregivers report fair or poor
health. The report also gives insight into how this statistic
varies across states, ranging from 11.7% to 34.4%.
The
study was selected as one of the week's lead articles for the
MMWR.
Click
the link below to read the research.
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RESEARCH OPPORTUNITY!
George Washington University Caregiver Research
Study
A
research study at George Washington University, investigating the
cognitive and physiological effects of Black American caregivers,
is looking for volunteers to participate!
You may
be eligible to participate if:
· You are
an adult Black male between the ages of 40-85;
· You are
caring for a family member or loved one (spouse, sibling, or
parents, family friend) diagnosed with Alzheimer's or dementia;
· You
agree to participate in the study.
The
study involves:
· 1 study
visit lasting 2-3 hours;
· Questionnaires
about health, sleep, and stress;
· Saliva
samples;
· Memory
and thinking tests;
· Compensation
of up to $75 and travel reimbursement.
Click
the link below to learn how to get involved!
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UPCOMING CONFERENCE!
National Caregivers Conference:
The Spirit of Resilience
October
15-16, 2020 | Philadelphia, PA
The
National Caregivers Conference is renowned for its national level
speakers, workshops and exhibitors who address both individual
and national issues facing the caregiving community. This year's
conference, held in Philadelphia, PA in October, is dedicated to
creating spaces for collaboration, learning, and healing to
support and elevate the role of caregiving nationwide.
The
National Caregivers Conference invites presenters to submit proposals
that provide quality-driven, evidence-based, culturally competent
solutions for caregiving best practices. Submit speaker proposals
HERE
by February
29th.
Do you have a new idea, product, technology or
therapeutic concept that can impact the role of family
caregivers? Apply by April 30th for an opportunity
to present to a panel of judges (Sharks), venture capitalists,
leading industry investors, healthcare providers, and caregiver
at the conference! Apply HERE
by April
30th!
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FOLLOW US
TO STAY CURRENT ON CAREGIVING!
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