Sunday, August 1, 2021

Are you Caring for a Child with a Rare Disease?

We’re excited to announce the release of the new resource, The Circle of Care Guidebook for Caregivers of Children with Rare and/or Serious Illnesses. Created with support by Mallinckrodt Pharmaceuticals and in partnership with Global Genes, this guidebook provides specialized information, supports and services that will aid family caregivers in their experience caring for a child with a rare and/or serious illness.

The guidebook is being released on August 5, with a special virtual release webinar being held at 2PM-3PM EST. We would like to invite you all to register for this event and to learn more about the guidebook from those who created it here: https://us06web.zoom.us/meeting/register/tZYvcuygqz8iHNQXezm3IscTCBkKfa8SzlAo.

We would also appreciate your help in inviting others to the release webinar. We’ve also included the social media toolkit for this event, which you can use to invite others to the webinar through your own channels.

When the guidebook releases on August 5, I will be sure to send you the link to the guidebook along with the accompanying social media toolkit so you can share it with others.