U.S.
Unpaid Caregivers Struggling the Most with Emotional Health
Problems: Report "'The
Embracing Carers report tells a critical story — that caregivers
need more attention so that they can protect the people most at
risk from COVID-19 and those who care for them,' C. Grace
Whiting, J.D., president and CEO of the National Alliance for
Caregiving told McKnight’s Home Care Daily. 'Notably,
the research found that the women in our lives shoulder more care
burden and aren’t being heard.' Most of
these caregivers represent 'mothers, sisters, aunts, and others
who need our help,' Whiting added. 'The
research also makes clear that it’s not enough just to talk about
racial justice — we need to strengthen infrastructure for
communities of color, where caregivers in racial or ethnic
minorities face a greater risk from COVID-19 and less access to
caregiving supports,' she said." |
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From: McKnight's Senior Living |
February 25, 2021 |
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Ending Racial Disparities in Rare Disease Care "'Racial
bias is entrenched in our healthcare system and deeply lowers
the quality of care for patients of color. The Rare Disease
Diversity Coalition is working to educate, support and empower
rare disease patients of color and their caregivers so they can
be their own advocates,' said Dr. Elena Rios, President &
CEO of the National Hispanic Medical Association." Learn
more about the Rare Disease Diversity Coalition HERE. I From:
Clarke P, LLC | February 24, 2021 | |
| The Saving Power of a Caregiving Journal "There
is something about recording what is happening to us and our
emotional reactions that enables family caregivers to stand
apart from the onrush of tasks and crises they're immersed in
and observe what they're going through, reflect on its greater
meanings and feel more in control. There
is no one right way to journal; all who practice it find the
focus and style that work for them. But here are some general
suggestions." From:
AARP | March 2, 2021 | |
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INTRODUCING
A Unified Strategy to Support Family Caregivers Across
the Nation |
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The
National Alliance for Caregiving (NAC) has released From
Momentum to Movement: Developing a Unified Strategy to Support
Family Caregivers Across the Nation. This report
represents the first iteration of a living document and
compilation of resources to help guide advocates in developing
statewide caregiving strategies that address community-level
needs. This report presents a strategic process to foster the
development of actionable goals in new state plans. It also
includes core policy recommendations in person-centered domains
intended to coordinate alignment across key global, national, and
state-level priorities and to strengthen movement toward a
robust, unified caregiving strategy for caregivers across the
lifespan. |
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The Longevity Project Webinar: Caregiving in
Crisis - What Should Congress Do? March 31, 2021 | 1:00-2:00 PM EST | Online On
Wednesday, March 31st, the Longevity Project, in collaboration
with the Stanford Center on Longevity, will kick off the National
Conversation on Caregiving, an initiative designed to raise
visibility around the caregiving crisis in the United States. In
this virtual event, we bring together experts in policy and
caregiving to discuss opportunities for Congress and the new
Administration to better support caregiving and caregivers. Keynote Conversation: · Congressman
Jim Langevin (D-RI) Panelists: · Jon
Broyles, Executive Director of the Coalition to Transform Advanced Care
(C-TAC); · Dr.
Terry Fulmer, President of The John A. Hartford Foundation;
and · Dr.
Jennifer Olsen, CEO of the Rosalynn Carter Institute for
Caregiving. |
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RARE on the Road: Global Genes Rare Disease
Leadership Tour March-May 2021 Since
2017, Global
Genes and the EveryLife
Foundation have partnered to host RARE on the Road
events around the country, developing the next generation of
advocacy leaders. With feedback from the community, RARE on the
Road 2021 will consist of one interactive webinar, open to all
who wish to
attend, regardless of their geographic location, and three
virtual, state-specific meetings focusing on issues and resources
relevant to residents in Nevada, Florida, and Illinois. Click
the red link below to learn more. |
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Health Equity Summit April 28, 2021 | 11 AM - 2:30 PM EST | Online Amgen's
2020 Health Equity Summit illuminated the value of
cross-sector/functional partnerships intended to disrupt systemic
barriers to good health among vulnerable populations. The 2021
Summit will highlight innovative collaborations that have emerged
from this time of adversity and best practices for building
strategic partnerships to help make American health care more
equitable for all people. |
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Apply to Be a Health and Aging Policy Fellow Deadline: April 15, 2021 Candidates
with a strong commitment to health and aging issues, leadership
potential, and interest in aging-relevant policy work are invited
to join the next class of Health and Aging Policy Fellows
(2021-2022). The
Health and Aging Policy Fellows Program continues to make great
strides in advancing policy with creative solutions in the
context of COVID-19. | |
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Help the
NIH End Structural Racism in Biomedical Research Deadline:
April 9, 2021 The NIH is
requesting a moment of your time to respond to a Request
for Information for input on practical and effective
approaches to improve and strengthen racial equity, diversity,
and inclusion across all facets of the biomedical research
enterprise, both within NIH and the external community, and
expand research to eliminate or lessen health disparities and
inequities. The NIH
invites you to share your perspective and recommendations as we
thoughtfully consider NIH’s proactive approach to address racial
and health inequities in biomedical research. Comments
can be submitted through the submission
website and must be received by April 9, 2021. |
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Fast-Forward:
A Documentary That Helps You Change Your Life Premiered
March 24, 2021 | PBS Fast-Forward
follows four millennials and their parents as they travel through
time to meet their future selves. Wearing an MIT-produced “aging
empathy suit” and working with professional make-up artists, they
grapple with the realizations, conversations and mindset required
to age successfully. Ultimately, the families learn they have
more control over how they age than they thought. Next
Avenue has partnered with the film to produce
courses and a digital toolkit of resources, including
step-by-step instructions and a master
checklist, designed to help viewers prepare their own aging
plans. Click
the link below to learn more about how you can watch. |
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New
Research on Men and Caregiving from Better Life Lab |
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A new Better
Life Lab report by Jahdziah St. Julien discusses the
experiences of Black men caregivers. The report found that 43% of
Black men have provided care in high-intensity care situations.
In addition to the report, Jahdziah St. Julien wrote a blog post
reflecting on her dad's experience caring for his older brother,
who had suffered from a stroke in 2014. You can read the blog, Painting
a Portrait of Caring Black Men: A
Personal Reflection, HERE. |
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The
report is part of a series
of men and care in the United States. The
latest findings from the series, which are based on survey
results from a nationally representative study, include how the
experience of providing care transforms men and two in-depth
reports on different subsets of survey respondents—Black men who
care for family members—and men who are professional caregivers
(nurses and early childhood educators). We have also launched a
series of one-page explainers that distill findings from each
report in the series, including a brief on series takeaways for
individuals and families, policymakers, and organizations. Click HERE to
learn more about the series. |
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Alzheimers.gov,
developed by the National
Institutes of Health and the U.S.
Department of Health and Human Services, is a
new educational resource and portal to federal information on
Alzheimer’s disease and related dementias for people living with
dementia, caregivers, health care providers, community and public
health professionals, and researchers. Click
the red link below to view the site and get help today! |
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Respite
Relief for Military and Veteran Caregivers |
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The
Elizabeth Dole Foundation and the U.S. Department of Veterans
Affairs have joined together to create a new program, Respite
Relief for Military and Veteran Caregivers, which offers family
caregivers of veterans or service members access to free, short-term
relief with the help of in-home care professionals. | |
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FOLLOW US
TO STAY CURRENT ON CAREGIVING! |
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