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How Our Relationship Survived When
My Partner Got Sick
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"'Male caregivers, in
general, have the tendency to play tough guy and not allow
themselves to experience any feelings,' says Barry Jacobs, Psy.D.,
a clinical psychologist who’s a national spokesperson on family
caregiving for the American Heart Association. That breeds a
conspiracy of silence that shuts out your partner and doesn’t give
honest conversations—the stuff healthy relationships are built
on...
You’ve got to find a way to bring
up what you’re feeling, even if it’s negative. One way to start is
to define the illness as a couple or family issue—'us against the
disease,' says C. Grace Whiting, CEO of the National Alliance for
Caregiving, a research and advocacy group. Then together you can
acknowledge what has been lost and the sadness around that."
From: Men'sHealth | November 21,
2019
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Addressing the Caregiver Crisis in the Workforce
"To
determine what benefits or programs would be most effective,
employers should ask their workforce directly through an employee
survey, creating an open channel for employees to suggest the
benefits that would be the most helpful.
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Employers
can also study claims data to keep their finger on the pulse of
how many employees have had children and could be in a childcare
situation, or how many had a spouse diagnosed with a critical
illness or disability. These can be opportunities to create
personalized touch points and engage these employees with the
available resources."
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From: Benefits Pro | November
14, 2019
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Caregiving Report Highlights Need for Collective
Action
"The
estimated economic value of [caregivers'] unpaid contributions
was approximately $470 billion. By comparison, all out-of-pocket
spending on U.S. health care in 2017 was only $366 billion...
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These
realities are particularly relevant today because families
and family caregivers are changing... Smaller families mean fewer
siblings to help share the care. High rates of divorce and
smaller family sizes, coupled with more working families, means
that in the future, older adults with health and functional needs
will have fewer potential family members on whom they can rely
for everyday help."
From: AARP Blogs | November 20,
2019
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NEW RESEARCH: Sandwich Generation
Caregiving in the U.S.
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“Families are squeezed, and they
need help to balance work and home life. National conversations are
heating up on paid family and medical leave, universal childcare,
and the need to expand long-term services and supports. Now is the
time to invest in workplace flexibility and a robust national
infrastructure that can support and augment care for the friends and
family who need our care." - C. Grace Whiting, J.D., President/CEO of the
National Alliance for Caregiving.
In the spirit of National Family
Caregivers Month, the National Alliance for Caregiving and Caring
Across Generations, in partnership with MassMutual's SpecialCare
program, have released “Burning the Candle at Both Ends: Sandwich
Caregiving Generation in the U.S.” today, November 26th. The report
was released at a briefing with policymakers, caregivers, and other
stakeholders.
This groundbreaking study shines
some light on the estimated 11 million Americans who are caught
between the demands of both childcare and caring for an aging or
disabled adult family member. The above info-graphic represents
some of the unique characteristics of these caregivers, such as
that 67% of sandwich caregivers are employed, underscoring their
need for such policies as the Paid Family and Medical Leave Act.
The info-graphic also highlights the diversity of this group of
caregivers, demonstrating the importance of solutions that fit
their diverse needs.
View a recording of the national
briefing on this report HERE.
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The RAISE Family Caregiver Resource and
Dissemination Center
To
support the Family Caregiver Advisory Council’s work, the
National Academy for State Health Policy (NASHP) has created the
RAISE Act Family Caregiver Resource and Dissemination Center with
support from The John A. Hartford Foundation to:
· Develop
family caregiving resources for state and federal policymakers
and other stakeholders;
· Provide
support to the council and its subcommittee member as they craft
policy recommendations;
· Convene
experts and thought leaders to provide perspectives and expertise
to the council; and
· Support
states as they develop policies to address family caregiver
issues.
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Connecting ALS Podcast: Panel Discussion on
Caregiving
Connecting
ALS is a monthly podcast from the the ALS Association. Through
conversations, interviews, and audio documentaries, Connecting
Allies aims to to discuss research and technology developments,
highlight advocacy efforts, and share the personal stories woven
through the community.
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If
you're an ALS caregiver, you can find more resources HERE.
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REQUEST FOR PROPOSALS!
Conduct Listening Sessions for the
RAISE Family Caregiving Advisory Council
Due: November 30, 2019
The National Academy for State
Health Policy also released a Request for Proposals (due 11/30)
from experienced contractors to organize, facilitate, and summarize
listening sessions and/or focus groups for the Council in 2020.
NASHP is supporting this series of public listening sessions,
starting in calendar year 2020, to assist the Administration for
Community Living (ACL) in its effort to engage with members of the
public, families and family caregivers, diverse stakeholders, and
other individuals and entities with an interest in understanding
and supporting the multi-faceted needs of family caregivers across
the age and disability spectrum.
Proposals (and any questions)
should be submitted to Wendy Fox-Grage by November 30, 2019 and
should be no more than five pages in length. The successful
contractor is expected to be notified by December 20, 2019.
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FOLLOW US TO STAY CURRENT ON
CAREGIVING!
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